News

No Fixed Address: The White Cart Memorial Film Screening

We invite you to join the BC Centre for Palliative Care, Kelowna Homelessness Research Centre, and Community Action Initiative for a free screening of the BC based documentary No Fixed Address: The White Cart Memorial, including a live discussion with the directors/producers on the themes of the film. 

The film is a powerful and intimate documentary that sheds light on a deeply overlooked aspect of the homelessness crisis: people's grief following the death of someone they care about. Through the voices and stories of individuals living with unstable housing, the film explores what it means to grieve without a house, and how loss echoes through a community already struggling to survive. Dedicated to the memories of all unhoused lives lost—and those who carry their grief forward—the film urges us to rethink how we hold space for mourning in public, and how we can come together to build more compassionate, inclusive systems of care. Film trailer available at: https://vimeo.com/1115956034.

November 13th screening:

• Join us on Thursday, November 13, 6:00 - 8:30pm at the Sandman Hotel Vancouver Downtown (180 West Georgia Street Vancouver, BC V6B 4P4).

• This free community event is open to the public.

• Learn more and RSVP here: https://www.eventbrite.ca/e/no-fixed-address-the-white-cart-memorial-film-screening-tickets-1778222514409

Grief is a natural response to loss, yet too often, it is faced in silence.

In BC , local hospice societies walk alongside more than 85,000 people each year through grief, bereavement, and anticipatory grief support. These programs are free, accessible, and deeply rooted in community, yet most rely on short-term grants, donations, and volunteer efforts rather than sustained health system funding.

This creates an uneven and inequitable landscape of grief care, especially in rural and remote communities,  where access depends too often on where a person lives, rather than on need. Despite these challenges, hospice societies continue to fill critical service gaps, providing frontline mental health and wellness along with emotional support to thousands of British Columbians  every year.

On this day, BCHPCA joins the Canadian Hospice Palliative Care Association (CHPCA) along with other organizations like Canadian Grief Alliance, Canadian Alliance for Children's Grief, in calling for national action to close Canada’s #GriefLiteracy gap and establish stable, equitable funding pathways for grief and bereavement care for all!

Why It Matters

• Everyone will face loss at some point in their lives.
• Most Canadians lack the knowledge or support to cope with grief.
• Community based grief programs reduce isolation, strengthen resilience, and prevent mental health crises.

Take Action

• Talk openly about grief and loss.
• Share open source resources that will help people cope and feel supported during their time of need. Visit your local hospice societies for resources as a great starting point.
• Contact your MP or MLA to make grief literacy and bereavement supports a health priority.

BCHPCA’s Action

• Meeting with MLAs and government leaders at the BC Legislature on November 18 to close the #GriefLiteracy gap and bring awareness to strengthen access of grief and bereavement care across the province.

• Bringing together hospice societies from across BC for the first time to co-develop a Provincial Grief and Bereavement Framework, a coordinated plan to sustain and expand community-based grief and bereavement care.

• Continuing the only national conference that unites the grief, bereavement, and mental health sectors under one roof;
  The Grief, Bereavement & Mental Health Summit, creating space to learn, share resources, and advance national collaboration

• Being part of the Provincial Improvement Action Plan of BC Centre of Palliative Care (BC-CPC) and the Next Steps Grief Action Plan, by Canadian Grief Alliance.

Let’s work toward a future where every person in grief feels seen, supported, and understood.

#Grief #GriefLiteracy #MakeGriefAPriority #HospiceCare #BereavementSupport #CommunityHealing #BCHPCA

Released: October 1, 2025 by Statistics Canada

A new national study from Statistics Canada, Living with a Life-Limiting Illness: A 2024 Crowdsourced Study of Experiences and Access to Care, offers a rare glimpse into how Canadians living with life-limiting conditions, and their unpaid caregivers, experience care, access, and support.

The study engaged nearly 1,000 participants across the country between October 2024 and March 2025, including people living with advanced cancer, dementia, and neurological diseases, as well as unpaid family and community caregivers. While not statistically representative, the findings provide meaningful insight into lived experiences and highlight ongoing gaps in palliative and end-of-life care.

Among participants, only 27% reported receiving a high level of palliative care, while 30% experienced low levels of support. 80% said that health services were difficult to access outside regular hours, and over half reported complications due to delayed or insufficient care. Pain and symptom management, specialist referrals, and care coordination were among the hardest services to access.

The study also sheds light on the experiences of unpaid caregivers, 89% reported never receiving an assessment of their support needs. The most requested supports were respite care, improved communication with health-care providers, and access to home care or financial assistance.

These findings reinforce what hospice societies across British Columbia see every day: that timely, community-based palliative and bereavement supports are essential to quality of life and to the sustainability of our health system. BCHPCA commends Statistics Canada, Health Canada, CIHI, and the Public Health Agency of Canada for advancing this critical national conversation, so that provinces and territories, in partnership with care providers, can support people where and when it is needed most.

BCHPCA will use this report in our ongoing advocacy to strengthen the integration of hospice palliative care within the health system and to ensure that hospice societies are recognized as equal partners in the continuum of care across communities.

Read the full release from Statistics Canada here:

Living with a Life-Limiting Illness: A 2024 National Crowdsourced Study of Experiences and Access to Care

In recent years, insurance has been a hot topic among our members, with many expressing concerns about rising costs and the lack of funding to offset them. For hospices, insurance isn't just a nice-to-have; it's a critical safeguard against a range of liability risks. As Carlene Forde noted, 'while many small groups assume that a simple liability policy and a basic property package are sufficient...the reality is far more complex'. Forde argues that non-profits often underestimate the breadth and depth of their insurance needs, facing unique challenges such as funding shifts and reduced donations, compounded by rising insurance costs . This complexity arises from the unique challenges hospices face, from ensuring the safety of patients and staff to protecting against potential lawsuits. Without adequate insurance, programs and services simply cannot happen.

The reality is that hospices are facing a perfect storm of rising insurance costs, increasing risks and challenges with funding. According to Hub International's Nonprofit Outlook report, insurance premiums for nonprofits are expected to rise between 7% and 20%. This surge is driven by factors such as social inflation, which refers to the increasing tendency of juries to award larger damages in lawsuits. Additionally, the growing threat of cyberattacks and data breaches has made cyber liability insurance a necessity for many nonprofits, further adding to their financial burden.

How do hospice societies and other nonprofits navigate this "perfect storm"? Unfortunately, there is no Staples "Easy" button for this. Here are a couple of suggestions :

• Form a good relationship with your insurance broker. Ask your broker to provide a detailed breakdown of your policy, including all exclusions and limitations. Also, inquire about potential discounts or risk management strategies that could help lower your premiums.

• Include the necessary insurance costs in project and program grant budgets. When preparing grant proposals, research the average cost of insurance for similar projects and include a line item for insurance expenses. Be prepared to justify this expense to grantors by explaining the importance of protecting the organization and its beneficiaries.

We encourage you to reach out to us via email at adam.webber@bchpca.org or through our online member forum to share your experiences and challenges with insurance. Your insights will help us develop more effective solutions and advocate for your needs.

Links:

Not-for-profits' insurance challenges often misunderstood, says expert | Insurance Business Canada

2024-Outlook-Nonprofit-CAE.pdf

Rise in civil litigation sparks social inflation concerns

Canada ranks below expectations in new global palliative care report

The 2025 World Map of Palliative Care Development, published in the Journal of Pain and Symptom Management, has placed Canada in the “Established” category, 8th in the Americas and 51st globally.
Countries like Uruguay, Costa Rica, Chile, and the U.S. ranked higher under the new WHO framework assessing policy, access to essential medicines, education, research, and community empowerment.

The findings highlight both progress and a warning: while palliative care is embedded in parts of our system, major gaps remain in community-based care, data coordination, policy integration, and sustainable funding, areas where hospice societies play a critical role, like in rural and remote communities.

Hospice societies across BC are already leading the shift toward stronger, community-based care. It’s time for policy and funding to catch up.

As BCHPCA continues to advance the next frontier of hospice palliative care, integrated, community-led, and close to home, we’ll use this global evidence to strengthen our collective call for investment, data coordination, and policy alignment.

Read the study here: FREE REPORT
#HospicePalliativeCare #HealthEquity #CommunityCare #BC #Canada

Montreal, Quebec – September 29, 2025

The BC Hospice Palliative Care Association joins colleagues across Canada and around the world in mourning the passing of Dr. Balfour Mount, the "father of palliative care."

In 1975, he founded the Royal Victoria Hospital Palliative Care Service and McGill's Program in Integrated Whole Person Care and organized the first International Congresses on Care of the Terminally Ill, leaving a lasting impact on how healthcare addresses the physical, psychological, social, and existential suffering of seriously ill patients

Dr. Mount’s leadership, compassion, and scholarship shaped the practice of palliative care and continue to guide our work today. His contributions have brought comfort and dignity to countless individuals and families.

We extend our heartfelt condolences to his family, friends, colleagues, and all those grieving his loss. His extraordinary legacy will continue to inspire us.

️ May he rest in peace.

Cybersecurity knowledge and cyber insurance are top of mind for many and frequently discussed in meetings. Common questions include: How can we best protect our data? How do we keep clients’ personal and private information safe? What steps should we take if our website is hacked or if phishing emails are sent to our contacts?

Navigating the ever-evolving cybersecurity landscape can be challenging, and you’re not alone in figuring out where to start.

We recommend speaking with your insurance broker to determine if cyber insurance is appropriate for your organization. Keep in mind that there are specific requirements for cyber insurance eligibility, so it’s important to ensure your organization meets them. There have been notable cases where cyber incidents were not covered due to unmet requirements—for example, the $5 million claim denied to the City of Hamilton due to lack of login security (CBC News article). While this was a significant attack, it highlights the importance of compliance with cyber insurance standards.

On Oct 1, 2025, Imagine Canada is hosting a webinar: From Insights to Action: Cybersecurity for Nonprofits, Stronger Together     Learn more and Register here

To learn more about cybersecurity issues and practical steps to protect the data and personal information you manage, please explore these excellent resources:

Canadian Centre for Cyber Security — The unified source for expert advice, guidance, services, and support on cybersecurity for Canadians.

Get Cyber Safe — A national public awareness campaign providing simple, effective steps Canadians can take to protect themselves online.

Canadian Centre for Nonprofit Digital Resilience — Dedicated to empowering Canada’s diverse nonprofit sector to use data and technology to advance their missions and amplify impact.

Adam Webber, Membership & Education Coordinator

On June 26 and 27, the BC Hospice and Palliative Care Association (BCHPCA) had the privilege of attending the CAT (Community Action Teams) Convening 2025, hosted by Community Action Initiative (CAI), a nonprofit organization transforming mental health and substance use (MHSU) support across British Columbia.

As connectors between grassroots organizations and government, CAI plays a critical role in supporting locally led initiatives and aligning them with broader provincial strategies. BCHPCA was proud to participate and reflect on how our work in grief, bereavement, and hospice-based services contributes to this shared vision of community wellness.

Key Takeaways and Connections to Our Work

1. Expanding the Conversation Beyond the Drug Crisis

While the convening's initial focus was on the toxic drug crisis, discussions increasingly emphasized a broader understanding of substance use, particularly in northern, rural, and Indigenous communities. This shift, backed by the Ministry of Health and local health authorities, resonates with our approach to grief and bereavement: understanding local contexts, meeting people where they are, and supporting holistic, culturally aligned care.

2. Building Strong Relational Foundations

It became clear that community trust and facilitation are crucial for sustainable impact. The example of Nanaimo's local facilitator model, designed to convene community dialogue and chart a new direction, echoes our own interest in supporting hospices as local hubs for healing. As BCHPCA continues to explore collective impact models, we find alignment with efforts to empower local leadership in addressing community grief and loss.

3. Collective Impact as a Framework for Change

One presentation that stood out was on Collective Impact, a model in which community members, organizations, and institutions work together to achieve systems-level change. The work of the Cowichan Community Action Team, shared by Mayor Michelle Staples of Duncan, demonstrated how partnership and coordination can lead to meaningful outcomes. This mirrors our ongoing collaborations within the Grief and Bereavement Funding Strategy Working Group, where we strive to support and amplify locally relevant grief supports.

4. Engaging Communities with Purpose

A session on Community Engagement, supported by Yulu Impact Consultants, introduced a flexible toolkit to help raise awareness, reduce stigma, and tailor communications to community needs. BCHPCA sees communication not just as outreach, but as a means to inspire compassion and normalize conversations around grief, loss, and support.

5. The Data Behind the Crisis

The update from the BC Centre for Disease Control (BCCDC) highlighted current trends in drug poisoning events and deaths. While data suggests a decline, it’s important to recognize this may be due to tragic factors, including high death tolls and underreporting. Of particular concern is the disproportionate impact on First Nations communities, with 2024 data showing First Nations people dying at 6.7 times the rate of other BC residents. BCHPCA is committed to ensuring that data-informed service planning remains sensitive to these disparities and supports equity across the province.

6. Understanding the Cost of Substance Use

A powerful presentation by the Canadian Centre on Substance Use and Addiction emphasized the economic and social burden of substance use in Canada—estimated at $49.1 billion in 2020, largely from productivity losses and healthcare costs. BCHPCA believes that strengthening grief and bereavement services not only promotes healing but also alleviates pressure on other parts of the system, particularly healthcare and mental health services.

7. Youth Grief and Healing: Voices from the Field

A moving panel, “What Support Really Looks Like: Youth Grief and Healing,” revealed deep gaps in grief support for youth. Long waitlists, inconsistent age cutoffs, stigma, and a lack of immediate, accessible care all create barriers. Panelists called for partnerships with culturally competent organizations, drop-in counselling models, and greater attention to the wellness of care providers themselves—themes that align closely with our advocacy for funding, training, and community-rooted services.

Next Steps: Sharing Learnings and Strengthening Community Support

BCHPCA’s participation in CAT Convening 2025 was driven by a commitment to learning from diverse community initiatives and bringing valuable insights back to our hospice societies. Our goal is to ensure that hospice-based grief and bereavement services are connected to broader efforts addressing substance use, mental wellness, and community healing. As we move forward, we are focused on:

• Sharing Key Learnings with Hospice Societies
• Developing Tools for Community Engagement
• Fostering Partnerships for Education and Capacity Building
• Encouraging Dialogue with Hospice Societies

Moving Forward Together

The CAT Convening 2025 reaffirmed the vital need for collaboration across sectors to ensure that grief, substance use, and mental wellness are addressed not in silos, but as interconnected parts of a healthy community. We see strong alignment between the work of CAI, the Ministry of Health, Indigenous organizations, and local CATs with our mission to support hospice-led grief and bereavement services across British Columbia.

As we continue to expand our collective impact and develop sustainable funding strategies, we thank CAI and all the community members, presenters, partners, and organizers who made this convening a space for learning, reflection, and connection. We are honored to contribute to the conversation and look forward to deepening our partnerships to ensure that no one faces grief alone.

Daniel Ordonez Mantilla
BCHPCA Data & Research Coordinator

The BCCPC is pleased to announce the release of a key deliverable from their ongoing Quality Outcomes in Palliative Care project. 

“Essential Outcomes of Palliative Care in BC”, a checklist of nine (9) quality outcomes agreed upon by a wide-ranging province-wide advisory panel, including strong representation from people with lived experience. In addition to the nine outcomes, the report includes validated, reliable tools for measuring these consensus-driven outcomes. 

These Essential Outcomes mark an important step toward standardized, reportable palliative care outcomes for people in BC.

Full Report

2-page Summary

Key themes
The nine Essential Outcomes transcend care settings – whether the person is receiving care at home, in hospital, or with a hospice. The outcomes are grouped to address four key themes: 

• What a person experiences
• How a person and family are cared for
• What a person and family know and share
• How a person gets the care they need. 

Collective voices for an identified need
The project was initiated in response to Health Canada’s Framework on Palliative Care in Canada, which identified developing and standardizing person- and family-reported outcomes and experience measures as one of its four priorities for action. In 2024, BCCPC convened an advisory panel to develop recommendations for measuring palliative care outcomes in BC. 

This collaborative panel was drawn from the BC health system, hospice sector, Family Caregivers of BC, other key community organizations, and most importantly people with lived experience, who made up over 40% of the participants and played a critical role in shaping the outcomes.

The work continues
BCCPC’s work in this field will continue – they are now exploring opportunities to move forward with standardized reporting of palliative care outcomes in BC across settings, including Long Term Care homes.

Over 70 hospice societies across British Columbia deliver grief and bereavement services that reach more than 120,000 people each year, yet most operate without stable, designated funding. National data shows that 1 in 3 Canadians are navigating significant grief without adequate support, and BC hospices are seeing rising demand, longer waitlists, and growing complexity in the needs of those they serve. In response, BCHPCA has convened a provincial working group to develop a unified funding proposal to government, one that reflects the urgency, value, and community impact of these essential services.

On May 27, our first working group meeting brought together hospice leaders, providers and volunteers from across the province for a powerful discussion about the realities, gaps in funding, and shared priorities. Together, we began building the foundation for a unified provincial ask rooted in the voices and expertise of local communities.

Next Steps:

• The group meets again in late June 2025, expanding the conversation to explore regional delivery models and funding strategies.
• A shared drive of resources, research, and policy alignment has been created to support collaborative work.
• Regular updates will be shared with members, board representatives, and partners throughout the process.

This work is not just about funding, it’s about ensuring the services hospices deliver in community like grief and bereavement supports are seen as core health and mental health services, not charitable add-ons.

Thank you to all the hospice societies participating in this important work. Your leadership is helping shape a more equitable and sustainable future for grief care in BC.

Want to stay in the loop, provide feedback or learn more? Contact daniel.mantilla@bchpca.org or pablita.thomas@bchpca.org