Caregivers play a crucial role in ensuring the well-being and comfort of patients receiving hospice or palliative care |
A caregiver in the context of hospice and palliative care refers to an individual who provides physical, emotional, and often practical support to someone with a life-limiting illness. Caregivers are seen as part of the disciplinary team when it comes to hospice palliative care. A caregiver can be a loved one, family or chosen family member, community elder, leader or advocate, and/or someone appointed by the patient, or those seeking supports. Hospice palliative care allows caregivers the opportunity not only to support their loved ones and those they are caring for, but also allow them to take a break from day to day tasks like with respite care, and better support caregivers to care confidently with a continuum support of care. |
Hospice Palliative Care, can support caregivers with: |
Emotional and Psychological Support:Providing counseling, guidance, and emotional reassurance during challenging times. | Education and Training:Equipping caregivers with the necessary skills and knowledge to provide effective care. | Respite Care:Offering temporary relief for caregivers to rest and recharge. |
Practical Assistance:Helping with daily tasks such as meal preparation, household chores, and medication management. | End-of-Life Planning:Assisting caregivers and families in making informed decisions and navigating end-of-life care options. | Bereavement Support:Providing support and resources to caregivers after their loved one or the person they are caring for has passed away. |
It is an act of kindness to care for a family member, friend or someone you care about, but it can also result in some stressful or frustrating moments for caregivers or family members due to the complexity of the care and condition they are dealing with.
It is not uncommon for caregivers to experience loneliness and even guilt as they feel they are not providing the care their family or the person they are caring for deserves due to the length of the care period or lack of their (caregivers) knowledge.
It is important for you to be aware that you are doing a great job, and that hospice societies are available to assist you.
As a result, it is important to have easy access to assistance. We have compiled a starting point of resources to assist you in your journey:
Hospice societies and organizations like the Family Caregivers of BC also have wonderful resources to support BC residents in navigating challenging support systems in the province. |