BCHPCA would like to share the following resources developed by VirtualHospice.ca.
“Quality palliative care helps you honour your culture, spirituality and traditions. At LivingMyCulture.ca, people from various cultures share their stories and wisdom about living with serious illness, end of life and grief to support others.”
Subject: New resource developed by Indigenous Peoples encourages crucial conversations
Announced June 26, 2020
We are pleased to launch Coming full circle: Planning for your care a booklet to ensure Indigenous Peoples’ choices for their future healthcare are known and respected. It assists Indigenous Peoples in planning for and having discussions about their care should they become seriously ill or if they can no longer speak for themselves. Developed by Indigenous Peoples for Indigenous Peoples, the booklet includes:
- A series of questions to guide reflection on values, beliefs and wishes for future healthcare;
- Considerations for identifying a substitute decision maker(s);
- Conversations starters to make wishes known to families and healthcare providers; and
- Wisdom from Elders and Knowledge Carriers.
Quality palliative care respects people’s culture, traditions and spirituality. We honour the Elders’ Circle, which shared the wisdom of First Nations, Inuit and Métis People to create this booklet. Direct quotes from the Elders are included throughout the booklet. We are grateful to Ted Norris, Project Manager; Holly Prince, Project Lead and Writer; and the National Advisory Committee for addressing a national gap with such a practical, compelling guide. Funding for this project was provided by the Canadian Partnership Against Cancer.
Attached please find:
· Coming full circle: Planning for your care PDF (large print version available)
· Communication products for you to use
Coming full circle: Planning for your care is available as a downloadable PDF that can be printed and completed as a hard copy or completed online and saved as an electronic file that can be updated. It can be accessed through www.LivingMyCulture.ca, and selecting either First Nations, Inuit or Métis cultures.
COVID-19 underscores the importance of planning for unexpected health emergencies. We encourage you to forward this email to your colleagues and share this resource with the individuals and families you care for.
Re: #BlackLivesMatter, #IndigenousLivesMatter in Hospice and Palliative Care
Vancouver – Tuesday, July 7th, 2020 1:30 PM
Letter to our Members, Hospice Providers and Palliative Care Community:
We in hospice and palliative care are colleagues with shared values about the worth and dignity of each human life. We aim to understand the unique hopes and fears of each person in front of us, to truly be present, provide support, and relieve suffering for them, no matter their race, beliefs or gender identity.
We apply this person-centred approach to our care for people nearing end of life or living with serious illnesses because we truly believe that their lives matter, and caring for those in the most vulnerable state in their journey of life, is what we do best.
Dismantling racism and the effects of racism require all of us to act. In hospice and palliative care, this could mean getting ourselves, colleagues and volunteers trained on the realities of implicit bias, enforcing hiring practices that reflect the racial and ethnic makeup of our community populations, or researching effective methods to bridge racial disparities in access to palliative care services.
We write this letter in response to #blacklivesmatter to ensure we are pausing, reflecting and taking in what is happening to our marginalized populations in our communities. The question is, what are we doing in response to change? Are we doing enough? If not, what else can we be doing to ensure that #blacklivesmatter #indigenouslivesmatter #ethnicdiversitymatters in hospice and palliative care?
We look to our health care providers, governments, and community leaders to ensure action plans are considered and rolled out to reflect this need for change and unity.
As health care providers, we are at the frontline caring for those who need it most, no matter who they are, ensuring that they know and feel, that indeed, they do matter.
The British Columbia Hospice Palliative Care Association (BCHPCA) has launched its COVID–19 Hospice Impact Report on May 29, 2020, to provide a snapshot look into the impacts that hospices have been undergoing since the pandemic. This report is to highlight the three critical areas impacted: Donor and fundraising, Service and Program Delivery and Volunteer retention along with recommendations.
The effects of COVID-19 on hospice societies in BC will be felt for a long time to come. To understand those impacts better, we conducted a current view impact survey to collect the most relevant information on the challenges hospice societies are dealing with amidst this crisis. What are these challenges? And how do we work quickly and efficiently to mitigate them?
The extreme restrictions on end-of-life visitations across Canada and British Columbia during the COVID-19 pandemic, has seen families and clients dying alone. The Canadian Hospice Palliative Care Association (CHPCA) and the CHPCA Champion’s Council and now the BCHPCA are calling on our health authorities to implement a more compassionate approach.
The ECSF fund is a $350 million emergency funding program from the Government of Canada. In collaboration with the Canadian Red Cross and United Way Canada, the Community Foundations of Canada is supporting the allocation of funding to community organizations.
The fund is designed to help Canada’s most vulnerable populations during the COVID-19 crisis.
Prime Minister Justin Trudeau says the federal government plans to provide $350 million to Canada’s charities sector which have seen a severe drop in donations since the COVID-19 pandemic broke out, with donors hurting financially themselves and the charities unable to hold fundraising events. Read more at:
As COVID -19 becomes the norm in current days, there are significant challenges that hospices have been facing in delivering care to those nearing end of life and the community.
This fund will help the BCHPCA in providing support systems for hospices in BC around the areas of:
- Grief and bereavement services to support family members and loved ones who may have difficulty grieving the death of someone from COVID-19 and ensuring the hospice workers are able to tap into these type of services as well.
- Accessing personal protective equipment (PPE) due to shortages related to decreases and the funds to provide these types of equipment to staff. Currently, home visits have decreased tremendously due to health regulations, but hospice societies that are providing care in facilities are in need of funding and training of PPE (surgical masks, face shields and goggles, and medical-grade gloves).
- Ensure the availability of both public and professional education. COVID-19 pandemic emphasized the importance of Advance Care Planning (ACP), and the need to discuss healthcare wishes with family and healthcare professionals. The overall concept of ACP should be promoted to the general population but it is also important to illustrate why this is important in the context of COVID-19.
- And finally, BCHPCA will provide guidance and a platform for associated procedures and processes that hospice providers can follow during time of isolation and COVID- 19 to further aid within their practices.
A Life Well Lived is a Life Well Planned
Advance Care Planning is a process of reflection and communication. It is a time for you to reflect on your values and wishes, and to let your substitute decision maker know what kind of health and personal care you would want in the future if you were unable to speak for yourself. It is applicable to everyone, not just those who are sick and/or elderly.
Since 2012, April 16th has marked the day for National Advance Care Planning in Canada, serving as a reminder not only to start these important conversations with your substitute decision maker(s), but to review your wishes, if applicable. Each year, as part of Advance Care Planning (ACP) day, we choose unique campaign themes which guide the development of materials and resources for the ACP day toolkit.
Visit the ACP Day 2020 Campaign Website for additional information and resources.
Overview of the campaign
A. Campaign Theme
The theme for this year’s campaign is A Life Well Lived is a Life Well Planned.
B. Campaign Highlights
- Fireside Chat with Yvonne Heath and Laurel Gillespie
- Behind The Scenes documentary – delayed due Covid-19 in the U.S.A.
- 6-8pm family conversations
- “Say” – A song written and performed by award winning Canadian Artist, Tara Shannon
- SM Hashtag #YourCareYourWishes
C. Campaign Goals
i. Raise awareness of ACP on a national level
ii. Increase visibility and outreach of ACP on a national level
iii. Serve as a reminder for the public to start important conversations with substitute decision maker(s) and to review their wishes.
iv. Engage partner organizations and ACP champions
v. Public engagement
vi. Achieve a 10% increase on website traffic and social media engagement from last year’s campaign outreach numbers (see 2019 report)
D. Campaign key players
Sponsors: Health Canada, GSK
Leading entities: CHPCA – Speak up Canada
a. Partner organizations
i. Includes QELCCC, Community of Practice, National Task Group, Health Canada initiative partners, Champions
ii. Invite these partners to participate in ACP 2020 and engage with this year’s campaign
iii. Promote Toolkit
iv. Ask for feedback and report back
v. Offer support and help (SM/outreach/professionals/contacts)
b. ACP champions
Develop ACP Champions terms of reference document
Engage current ACP champions
– Suggestions on things we can provide
– Refer other champions for recruitment
– Spokesperson to Media
– Tag them on ACP Social media posts
– Have them post about ACP day on their SM
Recruit new ACP champions
c. Social Media
Facebook – Twitter – Instagram
– Fireside Chat broadcasted to social media channels with interaction from public. Tara Shannon will be premiering a pre-recorded performance on the 16th and a recording of the song will be available before the 16th for use and distribution. The live performance will be on the Nova Scotia Kitchen Party group on Facebook. There are over 235,000 members so it is a large audience.
– Paid campaign: targeted paid social media campaign on twitter and Facebook and Instagram. (Boosting posts+ posts promotion Ad.)
– Promote Behind The Scenes documentary.
– Cooperative SM sharing approach between ACP Canada and ACP contacts/champions (previously determined) on ACP SM accounts and ACP contacts SM accounts.
– This year’s National Advance Care Planning Day theme is A Life Well Lived Is A Life Well Planned. Who will support and care for you if you are ill? Plan ahead, talk and document your wishes for future health care. #YourCareYourWishes #ACPDay2020
– Do your family, friends and loved ones know your wishes for your future care? A life well lived is a life well planned. Start the conversation today! #YourCareYourWishes #ACPDay2020
– If you fall ill or become sick and can’t speak for yourself, who would know your wishes? Plan ahead. A life well lived is a life well planned. #YourCareYourWishes #ACPDay2020
d. Toolkit and Marketplace
The toolkit includes a brochure, poster, bookmark, survey, and a game to see how well friends and family know each other.
Let’s bust the myths about Hospice Palliative Care!
May 4th –10th, 2020 observes the twentieth annual Hospice Palliative Care Week. It is time to celebrate and share the achievements of Hospice Palliative Care throughout the nation. This year, the Canadian Hospice Palliative Care Association (CHPCA) addresses myths that circulate around Hospice Palliative Care in Canada.
CHPCA has created a downloadable poster that debunks popular myths and a FAQ poster that answers some of the frequently asked questions about hospice palliative care in Canada. To continue the conversation online, social media users are invited to test their knowledge by engaging with CHPCA’s Facebook (CanadianHospicePalliativeCare) and Twitter (@CanadianHPCAssn) and debunk the myths throughout the week.
Downloadable Resources for Hospice Palliative Care Week 2020
Resources for your organization
Press release template
Use this press release template to send to your local media or as a guide to create your own custom release.
Social media posts
Social media template. Copy and paste messages on your social media.
The BC Hospice Palliative Care Association, a not-for-profit membership organization, which represents individuals and organizations committed to promoting and delivering hospice/palliative care to British Columbians since 1986, is deeply saddened by the recent decision made by the Fraser Health Authority to cancel their long-standing contract with Delta Hospice Society.
Furthermore, we are concerned that this precedent-setting decision was made with seemingly no consultation with provincial hospice leaders and no consultation with the BC Hospice Palliative Care Association (BCHPCA) was considered.
Read BCHPCA’s response to Delta Hospice Society’s Loss of Funding HERE